About

Croydon
Sickle Cell and Thalassemia
Support Group

CSC&TSG believes that individuals living with sickle cell disease and thalassemia have the right to receive quality care and treatment. This can only be achieved if funding is made available to raise awareness, to educate health care providers and other professionals about the condition. CSCATSG mission is to champion this and support the work of the specialist nurses.

 

We do not discriminate between the types of sickle cell or thalassemia disorders or the ethnic groups concerned. We respect the views of every member and we aim to provide a safe platform for people living with these conditions to seek advice and support. We have a network of committed volunteers, who play an important part in running the charity, providing business support and assisting with fund-raising activities.

Our mission includes fighting for the conditions to become recognised on the register of diagnoses that attract free prescriptions and supporting clinicians in the pursuit of improved treatment and care, including stem cell and bone marrow transplants.

Donations from the public, fund-raising activities and membership fees supports the work that we do.  This financial support contributes to the essential welfare, research and educational projects that we facilitate.

AGM Report 2019

We respect the views of every member and we aim to provide a safe platform for people living with these conditions to seek advice and support.

Our Mission

CSC&TSG believes that individuals living with sickle cell disease and thalassemia have the right to receive quality care and treatment. This can only be achieved if funding is made available to raise awareness, to educate health care providers and other professionals about the condition. CSC&TSG mission is to champion this and support the work of the specialist nurses.

We respect the views of every member and we aim to provide a safe platform for people living with these conditions to seek advice and support. We have a network of committed volunteers, who play an important part in running the charity, providing business support and assisting with fund-raising activities.

Our mission includes fighting for the conditions to become recognised on the register of diagnoses that attract free prescriptions and supporting clinicians in the pursuit of improved treatment and care, including stem cell and bone marrow transplants.

Donations from the public, fund-raising activities and membership fees supports the work that we do.  This financial support contributes to the essential welfare, research and educational projects that we facilitate.

 

Our Vision

CSC&TSG is working towards a world where people living with sickle cell and thalassemia have equal access to housing, medical treatment, education and employment.

 

We want every school to be aware of the impact that living with sickle cell and thalassemia has on a child or adolescent and their capacity for learning and help them to develop protocols to meet the needs of each child, providing an environment that supports their educational and health needs.

 

We want to work with employers to raise awareness of the impact of sickle cell and thalassemia on employees and the support that they may need to meet the demands of the job including utilising financial assistance through the DWP Access to work scheme.

CSC&TSG will continue to work with young people providing training, mentoring and developmental support around their welfare rights so that they can make informed decisions for their future.

We want to work collaboratively with health professionals and pharmaceutical companies on a future where the diseases symptoms no longer control the life choices or life expectancy of the person born with them.

We Need Your Support Today!

Croydon

Sickle Cell & Thalassemia

Support Group

316 Whitehorse Road
Croydon
CR0 2LE

Email: cscatsg@outlook.com

Phone: 020 8251 7259

Mobile: + 44 (0) 7305 953 422

Registered Charity: 1100120

Get Monthly Updates
Quick Links